| Dec 5, 5-6pm Hannover / 9-10am US Mountain |
"Indigenous DNA and Data Extraction Beyond the Settler-Colonial State"
DNA and genomic data continue to be extracted from Indigenous peoples via ethically questionable means, despite the concerns expressed by global Indigenous peoples about co-optation and bio-commercialization of their peoples’ data. While the field of biomedicine is finally starting to recognize the importance of community-engaged approaches, DNA continues to be procured from Indigenous peoples whose rights and existence are differentially recognized by settler-colonial states. In fact, we see the permissive procurement of Indigenous peoples’ data along legal rules and ethical norms that are settler-colonial in construct which continue to disenfranchise Indigenous data sovereignties.
Bio: Krystal Tsosie (Diné/Navajo Nation), PhD, MPH, MA, is an Indigenous geneticist-bioethicist and Presidential Post-Doctoral Fellow transitioning to Assistant Professor in the School of Life Sciences (effective 01/2023) at Arizona State University. As an advocate for Indigenous genomic data sovereignty, she co-founded the first US Indigenous-led biobank, a 501c3 nonprofit research institution called the Native BioData Consortium.
Her research can be encapsulated in two main foci: Indigenous population genetics and bioethics. In particular, she focuses on bioethical engagement of Indigenous communities in genomics and data science to build trust. As a whole, her interest is in integrating genomic and data approaches to assess Indigenous variation contributing to health inequities.