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Rare Storytime: Extraordinary! A Book for Children with Rare Diseases
GLI worked with authors Kara and Evren Ayik to read Extraordinary: A Book for Children with Rare Diseases and led multiple discussions about the pediatric rare liver disease experience. As part of this program, GLI plans to add a broader selection of books and speakers, facilitating new conversations about rare liver disease and the role that young voices play.

Feb 4, 2023 12:00 PM in Eastern Time (US and Canada)

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