Hi I am Teresa Mitchem with Peer Support Coalition of Florida

Hello from DC!

Hi I'm peer support with Mental Health Assoc. of South Mississippi!

Center for Health and Health Care in Schools/GWU

Co-director of NY Region 1 Parent Training Information Center

@Helene - Thank you Helene for joining!!!

Do you use persons or identity-first language?

Person-first for myself and others

Thanks Melody

I was not aware of this difference...glad to become aware!

Person's first language is our typical go to

What kinds of intersectionality do you experience in your work?

Hello from PA

Hi Crystal! Good to see you

Good to see you as well, it has been way too long

Through talking together...we hope to find some issues that can bring us closer together

I am focused on the box on the last slide that helps us see that within systems....individual identities shape interaction!

Which one is the biggest challenge in practice?

I had a conversation yesterday with a person working in a system and has lived experience...she 'feels' valued in her system role and not in her 'lived experience' role

Many people with both SMI/IDD say everything is a wrong door because the system insists they go one place for one conditions, and somewhere else for the other condition, and providers do not speak to each other

That is a great point Melody. No Wrong Door can end up being No Right Door.

family leadership has to be more than a good idea...has to be real

I want to THANK YOU very much for this Presentation. 💙

Our pleasure!

I'm not understanding all the terminology used in these polls...

ACCESS to ANY SERVICES IN Charlotte county. 02/23/1993 daughter bday

If there was policy that allowed joint funding for services is needed

My Story os just Like Jacobs's

Are you familiar with a scenario like this in your state or city?

Seems like Jacob's care is more complicated than it has to be. I am very familiar with this in some people I serve

Very familiar

Fustration

frustrating

Comlicated

too typical!

It is always shocking when a system see it all …..limits itself to one piece...it is a whole person!

My son's story is similar too. Especially the self-injurious behavior.

Not fully supported

What do providers need to know to meet Jacob’s complex medical needs?

We really need an integrating mental and physical health so the person can be treated as a whole. Our current system does not work.

Ditto that Ruthena!

Do the providers even have a picture of the fragmented services????

Good question Joanne. What do the systems know about themselves?

No, providers do not know.

yes Melody i agree. The behavioral supports or any supports for autistic individuals in FL

School Districts must conform in similarities-we lived in 3 different ones and our 1st was phenomenal. The middle was disastrous, and 3rd is great at providing future ideas and career goals. We liked #1 & 3 and should've skipped 2 but home schooled successfully instead to catch up with outside OT & services above and beyond school systems.

Do they even see that everybody recognize that it is messed up!

To allow funding for services for the whole person would need to happen at the federal level

They recognize it is messed up, but still do not care

I think providers are in silos of their own making, and we peer supporters are caught in the middle of it and seldom have the power to do anything about it

Good point..that vision of the whole person has to underly all policies!!!

the funds are there. the problem is the employment Crisis

Yes, a whole person! Can't take myself apart to get care!

I remember working in a behavior center and billing for peer support services was not easy because we did not know what we can bill for. We would need to go in and change the billing code so that services can be paid.

Whole person and supports that are responsive to real life

Even private insurance companies do not pay much for mental health services.

More education needed for people to understand ASD can have co morbid mental disorders. Mental health providers seem to look only at Autism

exactly-school and medical providers need to work in uniform-Lee County works that way and was highly productive to provide continuity & consistent support even financially. Connected us to Family Café services

This is my experience in Florida- Sadly

The system is hard to navigate and hard to find good care providers. Florida

Who do we need to engage to address the lack of integration?

Need more integrated wholistic care in Mississippi

Florida counties differ drastically not consistent

We just need more integrated care period, in Mississippi.

I see that providers train with those who are in teh same field....learned what they learned....think what they think.We need interdisciplinary training using scenarios like jacob

my daughter with Autism will have access to the med waiver April 1st. We will probably wait 2 mos. possibly for personal care and all the needed services. In Port Charlotte.

NYS is a different world where my daughter's had to ignore her symptoms and struggle to just get through with lower grades than FL.

Are there any good examples of MH and I/DD system integration?

Thank you so much.

Thank you.

I think the best approach is a strength-based system rather than a diagnosis-based system

We need a Task Force for change!

There is a community of school age professional who are working together on this...I.. will ask themfor some exemplars!

Ditto Natalie

What-is tacit?

Really enjoyed this Ms Chioma! Thank you and Jeremy!

Lee County FL is extremely organized on all- My child has complexity of 3 neurological conditions-She made it from not speaking to High Honors Principal's List in Pinellas Co later after regaining ground from horrible Hillsborough FL

Thank you!

Topic: Exploring an Important Intersection within The Systems of Care:Intellectual and Developmental Disabilities and Mental Health Disabilities CoPTime: Apr 6, 2022 02:00 PM Eastern Time (US and Canada)Every 2 weeks on Wed, until May 4, 2022, 3 occurrence(s)Apr 6, 2022 02:00 PMApr 20, 2022 02:00 PMMay 4, 2022 02:00 PMPlease download and import the following iCalendar (.ics) files to your calendar system.Weekly: https://us06web.zoom.us/meeting/tZUkdOGtqTwjHdFGcimqLeGz0wGSKvQXugYT/ics?icsToken=98tyKuGppzgiH9OSuR6CRpwcHYjCWe_wtmZEgqd7uxzsDjF_ZyTsZvVlAZlpIeDFJoin Zoom Meetinghttps://us06web.zoom.us/j/81938577975

Tacit knowledge is knowledge we take for granted that everybody has...

We hope that you can join us next week to continue this important conversation.

😀

Best way a cop can respond is to call mental crisis team and provide a safety zone for the person until they get there.

I wonder about how different assumptions about a person in MH crisis vs. a person with a disability drive the way law enforcement reacts in a given situation.

Yes, Jeremy, cops and media both perpetuate the myth that people are dangerous when in MH crisis

💚

Thank you

Will we get an invitation ot eh CoP if we registeed for this session>

Thank you. Excellent topic and conversation needed.

Thank you for highlighting such valuable information!