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Exploring an Important Intersection within The Systems of Care: Intellectual and Developmental Disabilities and Mental Health Disabilities - Shared screen with speaker view
Teresa Mitchem
18:20
Hi I am Teresa Mitchem with Peer Support Coalition of Florida
Mariola Rosser
18:56
Hello from DC!
Melody Worsham
19:22
Hi I'm peer support with Mental Health Assoc. of South Mississippi!
Mariola Rosser
19:30
Center for Health and Health Care in Schools/GWU
Helene Fallon
23:58
Co-director of NY Region 1 Parent Training Information Center
Mariola Rosser
24:28
@Helene - Thank you Helene for joining!!!
Mariola Rosser
25:35
Do you use persons or identity-first language?
Melody Worsham
26:03
Person-first for myself and others
Mariola Rosser
26:25
Thanks Melody
Joanne Cashman
26:32
I was not aware of this difference...glad to become aware!
Helene Fallon
27:58
Person's first language is our typical go to
Mariola Rosser
29:37
What kinds of intersectionality do you experience in your work?
Crystal M Karenchak
29:56
Hello from PA
Mariola Rosser
30:13
Hi Crystal! Good to see you
Crystal M Karenchak
30:36
Good to see you as well, it has been way too long
Joanne Cashman
34:03
Through talking together...we hope to find some issues that can bring us closer together
Joanne Cashman
36:25
I am focused on the box on the last slide that helps us see that within systems....individual identities shape interaction!
Mariola Rosser
40:59
Which one is the biggest challenge in practice?
Joanne Cashman
45:20
I had a conversation yesterday with a person working in a system and has lived experience...she 'feels' valued in her system role and not in her 'lived experience' role
Melody Worsham
46:15
Many people with both SMI/IDD say everything is a wrong door because the system insists they go one place for one conditions, and somewhere else for the other condition, and providers do not speak to each other
Jeremy - CAFE TAC
46:52
That is a great point Melody. No Wrong Door can end up being No Right Door.
Joanne Cashman
48:29
family leadership has to be more than a good idea...has to be real
Nora Michaud
53:34
I want to THANK YOU very much for this Presentation. 💙
Jeremy - CAFE TAC
53:51
Our pleasure!
Melody Worsham
54:06
I'm not understanding all the terminology used in these polls...
Nora Michaud
55:35
ACCESS to ANY SERVICES IN Charlotte county. 02/23/1993 daughter bday
Crystal M Karenchak
58:41
If there was policy that allowed joint funding for services is needed
Nora Michaud
58:45
My Story os just Like Jacobs's
Mariola Rosser
59:11
Are you familiar with a scenario like this in your state or city?
Melody Worsham
59:17
Seems like Jacob's care is more complicated than it has to be. I am very familiar with this in some people I serve
Christine DuBois
59:21
Very familiar
H. Jane McCurdy
59:22
Fustration
Robyne Hockett
59:36
frustrating
Melody Worsham
59:45
Comlicated
Helene Fallon
59:47
too typical!
Joanne Cashman
59:48
It is always shocking when a system see it all …..limits itself to one piece...it is a whole person!
Carol Vyhonsky
59:48
My son's story is similar too. Especially the self-injurious behavior.
Natalie Eno
01:00:05
Not fully supported
Mariola Rosser
01:00:09
What do providers need to know to meet Jacob’s complex medical needs?
Ruthena Hensley
01:00:16
We really need an integrating mental and physical health so the person can be treated as a whole. Our current system does not work.
Melody Worsham
01:00:33
Ditto that Ruthena!
Joanne Cashman
01:00:52
Do the providers even have a picture of the fragmented services????
Jeremy - CAFE TAC
01:01:20
Good question Joanne. What do the systems know about themselves?
Beth Porter
01:01:24
No, providers do not know.
Nora Michaud
01:01:30
yes Melody i agree. The behavioral supports or any supports for autistic individuals in FL
Patricia Kelly-Banks
01:01:32
School Districts must conform in similarities-we lived in 3 different ones and our 1st was phenomenal. The middle was disastrous, and 3rd is great at providing future ideas and career goals. We liked #1 & 3 and should've skipped 2 but home schooled successfully instead to catch up with outside OT & services above and beyond school systems.
Joanne Cashman
01:01:33
Do they even see that everybody recognize that it is messed up!
Crystal M Karenchak
01:01:47
To allow funding for services for the whole person would need to happen at the federal level
Beth Porter
01:01:56
They recognize it is messed up, but still do not care
Melody Worsham
01:02:13
I think providers are in silos of their own making, and we peer supporters are caught in the middle of it and seldom have the power to do anything about it
Joanne Cashman
01:02:27
Good point..that vision of the whole person has to underly all policies!!!
Nora Michaud
01:02:47
the funds are there. the problem is the employment Crisis
Melody Worsham
01:03:10
Yes, a whole person! Can't take myself apart to get care!
Ruthena Hensley
01:03:15
I remember working in a behavior center and billing for peer support services was not easy because we did not know what we can bill for. We would need to go in and change the billing code so that services can be paid.
Joyce Sebian
01:03:16
Whole person and supports that are responsive to real life
Carol Vyhonsky
01:03:21
Even private insurance companies do not pay much for mental health services.
Natalie Eno
01:03:32
More education needed for people to understand ASD can have co morbid mental disorders. Mental health providers seem to look only at Autism
Patricia Kelly-Banks
01:03:44
exactly-school and medical providers need to work in uniform-Lee County works that way and was highly productive to provide continuity & consistent support even financially. Connected us to Family Café services
Natalie Eno
01:04:17
This is my experience in Florida- Sadly
Carla Ford
01:04:19
The system is hard to navigate and hard to find good care providers. Florida
Mariola Rosser
01:04:40
Who do we need to engage to address the lack of integration?
Melody Worsham
01:04:45
Need more integrated wholistic care in Mississippi
Patricia Kelly-Banks
01:04:49
Florida counties differ drastically not consistent
Beth Porter
01:05:11
We just need more integrated care period, in Mississippi.
Joanne Cashman
01:05:57
I see that providers train with those who are in teh same field....learned what they learned....think what they think.We need interdisciplinary training using scenarios like jacob
Nora Michaud
01:05:59
my daughter with Autism will have access to the med waiver April 1st. We will probably wait 2 mos. possibly for personal care and all the needed services. In Port Charlotte.
Patricia Kelly-Banks
01:06:02
NYS is a different world where my daughter's had to ignore her symptoms and struggle to just get through with lower grades than FL.
Mariola Rosser
01:07:08
Are there any good examples of MH and I/DD system integration?
Ruthena Hensley
01:07:19
Thank you so much.
Christine DuBois
01:07:33
Thank you.
Melody Worsham
01:07:47
I think the best approach is a strength-based system rather than a diagnosis-based system
Natalie Eno
01:07:54
We need a Task Force for change!
Joanne Cashman
01:08:17
There is a community of school age professional who are working together on this...I.. will ask themfor some exemplars!
Ruthena Hensley
01:08:38
Ditto Natalie
H. Jane McCurdy
01:08:42
What-is tacit?
Melody Worsham
01:08:45
Really enjoyed this Ms Chioma! Thank you and Jeremy!
Patricia Kelly-Banks
01:08:58
Lee County FL is extremely organized on all- My child has complexity of 3 neurological conditions-She made it from not speaking to High Honors Principal's List in Pinellas Co later after regaining ground from horrible Hillsborough FL
Joyce Sebian
01:09:11
Thank you!
Jeremy - CAFE TAC
01:09:17
Topic: Exploring an Important Intersection within The Systems of Care:Intellectual and Developmental Disabilities and Mental Health Disabilities CoPTime: Apr 6, 2022 02:00 PM Eastern Time (US and Canada)Every 2 weeks on Wed, until May 4, 2022, 3 occurrence(s)Apr 6, 2022 02:00 PMApr 20, 2022 02:00 PMMay 4, 2022 02:00 PMPlease download and import the following iCalendar (.ics) files to your calendar system.Weekly: https://us06web.zoom.us/meeting/tZUkdOGtqTwjHdFGcimqLeGz0wGSKvQXugYT/ics?icsToken=98tyKuGppzgiH9OSuR6CRpwcHYjCWe_wtmZEgqd7uxzsDjF_ZyTsZvVlAZlpIeDFJoin Zoom Meetinghttps://us06web.zoom.us/j/81938577975
Joanne Cashman
01:09:47
Tacit knowledge is knowledge we take for granted that everybody has...
Mariola Rosser
01:10:39
We hope that you can join us next week to continue this important conversation.
H. Jane McCurdy
01:11:21
😀
Melody Worsham
01:12:31
Best way a cop can respond is to call mental crisis team and provide a safety zone for the person until they get there.
Jeremy - CAFE TAC
01:13:34
I wonder about how different assumptions about a person in MH crisis vs. a person with a disability drive the way law enforcement reacts in a given situation.
Melody Worsham
01:14:18
Yes, Jeremy, cops and media both perpetuate the myth that people are dangerous when in MH crisis
Melody Worsham
01:14:58
💚
Judith James
01:15:25
Thank you
Joanne Cashman
01:15:27
Will we get an invitation ot eh CoP if we registeed for this session>
Natalie Eno
01:15:31
Thank you. Excellent topic and conversation needed.
Helene Fallon
01:15:43
Thank you for highlighting such valuable information!