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Resource Library https://cancer-network.org/programs-2-3/resource-library/

Terms and definitions: https://www.dropbox.com/s/nr36ze3apowj6ex/LGBTQ%20Terminology-9pages.docx.pdf?dl=0

https://www.menti.com/alenaye92w6t

Gender Fluid: A person who doesn’t solely as male or female, and their gender identity changes over time.

Topposting our LGBTQ+ Terminology sheet: https://www.dropbox.com/s/nr36ze3apowj6ex/LGBTQ%20Terminology-9pages.docx.pdf?dl=0

Thank you for sharing this I need this. Appreciate all of this.

When referring to broader groups of people is using "gender diverse" people an acceptable way to include all people in an inclusive way?

Gender Neutral: someone who doesn’t dentify with a particular gender; avoiding distinctions between genders.

Thank you so much. Is it ok to call people by their name so I won’t make a mistake. I don’t want to disrespect anyone?

Replying to "Thank you so much. I..."over use of names can show your discomfort. be careful.

Another thing to mention is the initialism “LGBT”“LGBTQ” “LGBTQ+” “LGBTQIA+”. As an organization we are working on updating our name. We’d suggest LGBTQ+ or LGBTQI+

Hahaha, Bryce we’re on the same page LOL

What services do you have with (IDD / Disability) Developmental disabilities population who identify as LGBTQ. Are you seeing members from this group in your network?

Health equity is important, what do you recommend me to read to be more inclusive and sensitive about LBTQ+ community? (general reading or watching).

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even Hawaii?! damn

0 in Alabama and Louisiana? good news amidst all the frightening purple

As of today, it is now 409 anti-queer and anti-trans bills

There is Prostate Cancer early screening bill that has been sent 2 times to financial committee that will provide free testing state wide and bias training. Which effects all communities especially the underserved sectors.

Sharing a great link: https://themighty.com/

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Could you reshare the name of the source of this data? I want to go back after this webinar since it's a little difficult to see on Zoom

This is all very helpful, thank you!

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A challenge we have in our community, currently, is to ensure inclusivity we really need to speak to these populations. Current data sets do not support these efforts to demonstrate impact (i.e. Census Data only shows m/f demographics).Thank you for sharing these data sets/sources! do they drill down to county level?

Typical and Rare Diseases - stories from those living and surviving! The MIGHTY

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Replying to "Could you reshare th..."Here is the link to statewide data Williams Institute (statewide data): https://williamsinstitute.law.ucla.edu/visualization/lgbt-stats/?topic=LGBT&area=36#density and LGBTQ+ NYC residents: https://comptroller.nyc.gov/reports/results-of-a-survey-of-lgbtq-new-yorkers/

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It's really unfortunate that one of the best data sources calls it behavioral risk....

Will these chat links be shared as well as the recording?

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Thank you for sharing your slides! :)

Yes, the chat links and recording will be available

NASEM Report: https://www.nap.edu/catalog/26424/measuring-sex-gender-identity-and-sexual-orientation

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To answer Luis’ question about queer folks living with a disability: our community is more likely than the general population to have a disability. So, this is something that we will be looking into, but here is a great guide with information on LGBTQ+ folks living with disabilities.

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Are you including tobacco dependence in SUD or can you speak to that separately

https://www.lgbtmap.org/file/LGBT-People-With-Disabilities.pdf

Can you share the sources of these data?

Can you share the sources of these data?Yes, our slides will be sent out after the presentation with links on each slide to the sources of the data we’re referencing.

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Is there HPV vaccination uptake data in the LGBTQ+ population? I'm curious if that correlates with rates of HPV associated cancers? Or is it being studied?

Answer the poll HERE: https://www.menti.com/alenaye92w6t

Can you explain why lesbian and bisexual women have higher rates of breast cancer?

Aww so sorry no one should go through that! Cancer is difficult enough to go through.

Link to Frankly: https://cancer-network.org/sex-after-cancer-treatment/

Lack of community Patient Navigation and resources

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unfortunately this is no uncommon with the black community. As a prostate cancer survival I was delayed diagnosed / notification and even offer treatment without MRI & CT scan and insurance delayed payment, discrimination caused me to lose my doctor

This doesn't give us as much info as we'd all like, but please see this report for some NYS-specific information: SOGI: Demographics and Health Indicators, NYS Adults, 2019-2020 BRFSS available at https://www.health.ny.gov/statistics/brfss/reports/docs/2022-16_brfss_sogi.pdf

Advocate and push for change in the state

unfortunately this is no uncommon with the black community. As a prostate cancer survival I was delayed diagnosed / notification and even offer treatment without MRI & CT scan and insurance delayed payment, discrimination caused me to lose my doctorI am so sorry that you had to go through that discrimination. There is a lot of work that we all need to do to make cancer screening and care more inclusive and welcoming of folks with marginalized identities

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Replying to "Can you explain why ..."Can you explain why lesbian and bisexual women have higher rates of breast cancer?Barriers to care can affect breast cancer screening rates: fear of discrimination, low rates of health insurance, and negative experiences with healthcare providers. There is higher rates of associated risk factors, such as obesity, alcohol use, and lower rates of pregnancy (protective factor). Here are some sources to learn more: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3890640/ and https://www.cancer.org/healthy/cancer-facts/cancer-facts-for-lesbian-and-bisexual-women.html#:~:text=Lesbian%20and%20bisexual%20women%20may,may%20help%20save%20your%20life.

We've been having conversations about a complete adult preventive care checklist and how to make it more useful for all people. Have you found any good examples of something like that out there?

I think of a family that has a LBGTQ family members or cisgender in a single household. How to make the checklists useful for all family members.

Replying to "Can you explain why ..."Can you explain why lesbian and bisexual women have higher rates of breast cancer?There is no definitive data on why, but lesbian and bisexual women have higher rates of associated risk factors (obesity, alcohol use, and lower rates of pregnancy which is a protective factor). These communities also experience additional barriers to care and screenings: fear of discrimination, low rates of health insurance, and negative experiences with healthcare providers. Here are some links for additional information: https://www.cancer.org/healthy/cancer-facts/cancer-facts-for-lesbian-and-bisexual-women.html#:~:text=Lesbian%20and%20bisexual%20women%20may,may%20help%20save%20your%20life and https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3890640/

It does not have to come down to this, however, as an option, do you think that LGBTQ+ community accessing care from a physician from the same community could reduce the health disparity? If yes, are there data showing so and are there any such resources?

This has been so informative - thank you!

LGBTQ+ Cancer Peer Support Groups: https://cancer-network.org/programs/support-groups-for-survivors/

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Best and Promising Practices: https://cancer-network.org/resources/best-and-promising-practices/

Cancer Leaders Like Us: https://cancer-network.org/cancer-leaders-like-us/

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Register for Cancer Leaders Like Us Career Talk: A Medical Student’s Journey from Data to Headlines: https://us06web.zoom.us/meeting/register/tZUrf-qqqD4oEtOFR9luLV_f22ZQH2ND2_8g

CHJI -Cultivating Healing and Justice Initiative support Services Inc. has been sent up from the beginning as a diversity as one of our strength. We are all volunteer MD's - Founder is a cancer survivor and advocate & Activist, Public speaker, we love doing community events all year around and love to partner with multiple agency and colleges. We are only base in NYC & Mid-Hudson for now but drop off a email: info@chjisupportservices.org https://www.facebook.com/Cultivatinghealingandjusticeinitiative

That sounds like an amazing org. Thanks for sharing Luis

For higher rates of breast cancer: lack of screenings, yes, but also higher risk for those with no or geriatric pregnancies - it's about hormones.

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Well said Bryce. The fight to "survive" often becomes more important than any other thing, including healthcare.

May we build more trustworthy institutions of care. Thanks for all that you do

It does not have to come down to this, however, as an option, do you think that LGBTQ+ community accessing care from a physician from the same community could reduce the health disparity? If yes, are there data showing so and are there any such resources?There is limited data on this issue, however there is a study that shows that interaction and role modeling with LGBTQ+ physicians decreases implicit and explicit bias by medical students against LGBTQ+ patients (https://pubmed.ncbi.nlm.nih.gov/28766125/). Again, there is not much data on LGBT medical students, but the most recent data (2017), shows that only around 5% identify as LGB (no data on transgender students) and may not publicly identify as LGBTQ+. Unfortunately, finding an LGBTQ+ provider as a LGBTQ+ patient may not be easily accessible.

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Can you explain why lesbian and bisexual women have higher rates of breast cancer?Thanks Rachel for stepping in. There is no definitive data on why, but lesbian and bisexual women have higher rates of associated risk factors (obesity, alcohol use, and lower rates of pregnancy which is a protective factor). These communities also experience additional barriers to care and screenings: fear of discrimination, low rates of health insurance, and negative experiences with healthcare providers. Here are some links for additional information: https://www.cancer.org/healthy/cancer-facts/cancer-facts-for-lesbian-and-bisexual-women.html#:~:text=Lesbian%20and%20bisexual%20women%20may,may%20help%20save%20your%20life and https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3890640/

Is saying 'ALL GENDERS' are welcome or need cancer screening appropriate?

Welcoming Spaces: Treating Your LGBTQ+ Patient: https://cancer-network.org/welcoming-spaces/. Free through 2023

I work for a health plan and we are looking to collect more data on all of our members including SOGI. We are concerned about how to ask and how to let people know we will use this data for them rather than against them. DO you have any recommendations on language or key points

Karen, great question. When talking about cancer screening we encourage folks to talk about anatomy or organs and not gender. So using phrases like “people with a prostate” versus men

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Check out our co-brandable materials: https://cancer-network.org/programs-2-3/resource-library/

Here is a resource from Canada on gender inclusive language: http://www.phsa.ca/transcarebc/Documents/HealthProf/Gender_Inclusive_Language_Clinical.pdf

Excellent! Thank you!

Contact our Project Manager for Queer Health is Power: harold@cancer-network.org

This has be great. I'm looking forward to doing some follow up with you.

are health system being more proactive introducing more technology to help screen all eligible patients for cancer treatments ?

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Hi all! Please feel free to reach out to Bryce or I with follow up or questions! knoll@cancer-network.org

Bryce@cancer-network.org

This is very important work - thank you!

Thank you!

Thank you!

great work that the community needs !

Thank you!

This has been great - we're honored to have you present to us!

Don’t want to make a mistake if they don’t identify with any pronouns. I don’t want to judge anyone

Thank you soo much

Thank you All so much!

Thank you!

Great content! congratulations for the event! :)

Excellent Presentation! Thank you!

Thank you!

Thank you this is so informative.

Thank you!

Yes! Travis. Some people don’t use any pronouns, so that’s an option as well

Thank you so much!

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Thank you!

thank you!

Will we have access to this recording

You are great presenters!

Thank you, incredible presentation!

Yes slides and recording will go out as well as the chat dialogue

Replying to "Don’t want to make a..."Of course — introducing yourself with your pronouns or asking someone else what their pronouns are cultivates a welcoming and inclusive environment.

This was truly helpful, thanks

Thank you!

THANK YOU!!!

More work to do!

Thank you!

Thank you very much!

Thank you!! Have a great Day!!

Really great! Have an amazing day

Bye