ELSI Friday Forum | Balancing Data Privacy and Data Sharing: Normative and Technical Approaches

Join us on Friday, April 8, 2022, for the next ELSI Friday Forum: Balancing data privacy and data sharing: normative and technical approaches.

To maximize benefits for patients, broad access to comprehensive genomic datasets is necessary. However, data sharing is in tension with privacy obligations to individuals and groups, and threatens autonomy and control over data use. Data sharing policies, governance strategies and technical solutions have been proposed and implemented to resolve this tension. However, full resolution of this issue has not been achieved. What do ELSI scholars, data scientists, policy makers, health researchers and other stakeholders need to do to move forward?

Panelist: Bradley Malin, PhD (Vanderbilt University)
Panelist: Effy Vayena, PhD (ETH Zurich)
Moderator: Lucila Ohno-Machado, MD, PhD (UC San Diego)

To continue the conversation please join fellow audience members for an informal discussion in a Zoom meeting immediately following the forum. The link will be placed in the Zoom Chat during the forum. For those who cannot attend the live event, the forum will be recorded and archived on the ELSIhub Video page.

Closed captioning and/or transcripts will be provided for live and recorded events.

By registering for an ELSIhub event, attendees agree to abide by the ELSIhub Code of Conduct: https://elsihub.org/news/code-conduct