In this webinar, we’ll be joined by Alan Thomas who runs Ataxia and Me, a patient charity based in Wales with a global following. Ataxia and me focuses on Ataxia, but also includes associated rare diseases and movement disorders. Alan has partnered directly with MedComms agencies, biopharmaceutical companies and other industry groups in his quest to ensure that patient voices are heard more clearly. He has been a frequent conference speaker and is a strong supporter, for example, of PLS (plain language summaries). The increased appetite across the industry in recent years for engaging real life patients in communications activities has now coincided with the digital disruption in established working practices that has been accelerated by the COVID pandemic. On-line conferencing and social media platforms mean his mobility problems no longer need restrict Alan's advocacy activity in the same ways. But what happens in real life? Is the industry really walking the walk as well as talking the talk? Join us for wide-ranging conversation.
And we answer questions from the audience.
It should be of interest to anyone who is working in and around MedComms, or who is wanting to join the business.
The webinar is free of charge and, all being well, a recording will be posted afterwards at NetworkPharma.tv.
Note we are allowing 60 minutes for the webinar and we always aim to finish promptly on time.
MedComms Networking Webinars will be run every Wednesday at 12.00 midday UK time from 02 February through to 13 July 2022. Topics will range widely, but the aim is always to be relevant to people working in and around MedComms, by which we mean medical communications, medical education and medical publishing, and anyone who wants to start.
See http://www.MedCommsNetworking.com for full details of upcoming events.