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Understanding Spasticity And Those It Impacts
Spasticity is a condition where muscles become stiff and tighten up, affecting movement, and speech. It may also come with discomfort or pain. It is typically caused by damage to the brain or spinal cord and can be associated with multiple neurologic conditions.

In this webinar, we will hear from Ann Tilton, CNF Past-President and Professor of Neurology and Pediatrics and Section Chair of Child Neurology at Louisiana State Health Science Center. She will cover spasticity basics, including causes and conditions typically associated with spasticity and available treatment options.

Join us to also hear the experience of Charles Steward, parent of two young children, both of whom have severe cerebral palsy and one of whom has epilepsy. Charles also has a crucial added perspective: he is a genome scientist, and the Patient Advocacy and Engagement Lead at Congenica, a software company that enables clinicians and researchers to deliver life-changing answers, rapidly, through the analysis, interpretation and reporting of genomic data.

In this webinar, you will learn:

The basics of spasticity and conditions typically associated with it
Treatment options available
Insights from a family on how they’ve managed spasticity

Oct 21, 2021 10:00 AM in Eastern Time (US and Canada)

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Speakers

Ann Tilton
Professor of Neurology and Pediatrics and Section Chair of Child Neurology @Louisiana State Health Science Center
Ann Tilton, MD, is a Professor of Neurology and Pediatrics and Section Chair of Child Neurology at Louisiana State Health Science Center in New Orleans, Louisiana. She is director of the Rehabilitation Center at Children's Hospital of New Orleans and director of the Comprehensive Spasticity Program and immediate Past-President of the Child Neurology Foundation. Special interests include neurorehabilitation, neuromuscular disorders, and clinical applications and research in novel uses of botulinum toxin and intrathecal baclofen in the care of children and young adults with abnormal tone. She has extensive publications on numerous topics and has spoken nationally and internationally on child neurology, rehabilitation, and spasticity management.
Charles Steward
Patient Advocacy and Engagement Lead @Congenica
Dr Charles Steward has spent 27 years working on the human genome. As Patient Advocacy and Engagement lead at genomic analysis firm Congenica in the UK, he is passionate about the impact that patient advocacy and engagement and genomics can have in bringing about positive change for patients and their families. He also has two young children with severe cerebral palsy, one of whom had West syndrome epilepsy at 8 months, and genome sequencing of his family has not yet found an explanation for their challenges. Charles is involved with studies to investigate the significant genomic drivers behind cerebral palsy and preterm birth, disorders that are still considered by many to be accidents at birth.