ONLINE MEETING 13:00 - 17:00 CET
Participants: Representatives of patient organizations, clinicians, researchers, companies, academia, FAIR experts, funders, health policymakers and guest-speakers.
Objectives of the 3rd International FAIR meeting on data ‘visiting’:
- To understand the value of FAIR by Patient Organizations and patients themselves
- To increase awareness amongst Patient Organizations on the FAIR solutions available to them
- To be familiar with the latest infrastructure and ecosystem for data visiting in Europe
- To show tangible examples of successful FAIR practices
- To agree on next milestones on data visiting for Duchenne and other rare diseases