In this webinar, we'll be joined by Emma Bagshaw, Mark Larkin and Sam Llewellyn from Vitaccess who will discuss the lifecycle of creating collaborative digital patient registries and taking them through to the publications. Discussion will be based on the MyRealWorld MG study, which measures the impact of myasthenia gravis on patients' daily lives, as a case study. The panel will also include Fulvio Baggi, Director of The European Myasthenia Gravis Association (EuMGA) and member of the Scientific Advisory Board for the MyRealWorld MG study. This digital study was sponsored by argenx, and co-created with patient advocacy groups and key opinion leaders from 9 countries. The panel will explore the publication output which will helps give insight into the patient's reality of living with MG.
Questions from the audience will be welcomed.
It should be of interest to anyone working in and around MedComms.
The webinar is free of charge and, all being well, a recording will be posted afterwards at NetworkPharma.tv.
Note we are allowing 60 minutes for the webinar and we always aim to finish promptly on time.
MedComms Networking Webinars will be run every Wednesday at 12.00 midday UK time from 15 September through to 15 December 2021. Topics will range widely but the aim is always to be relevant to people working in and around MedComms, by which we mean medical communications, medical education and medical publishing, and anyone who wants to start. See http://www.MedCommsNetworking.com for full details of upcoming events.