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Topic
Announcing the Launch of the Genetic Cardiomyopathy Registry!
Date & Time

Selected Sessions:

Jan 22, 2025 06:00 PM

Description
Join us for this special webinar to learn about the groundbreaking Genetic Cardiomyopathy Registry! This webinar will be led by Greg Ruf, Executive Director of the DCM Foundation and GCAC, to explore how this new initiative aims to revolutionize our understanding of inherited cardiomyopathy. The Genetic Cardiomyopathy Registry is in partnership with NORD's IAMRARE Program. Topics covered will include: - Overview of genetic cardiomyopathy and its impact - The urgent need for a dedicated genetic cardiomyopathy registry - How the registry will collect and utilize data to potentially advance research and improve patient care - How to participate – criteria for individuals and families with inherited cardiomyopathy - The future of genetic cardiomyopathy research – potential breakthroughs and treatments - Live Q&A session We hope you can join us for this event!